More forward progress today for Lilly: after a grumpy start to her day (she was clearly DONE with this place), she managed to round a corner and exceed all expectations for post op day 4. She had her last surgical drain removed, she is walking much more steadily and increasingly independently, she is eating well and acting so much more like Lilly much of the time now. When we are within 30-45 minutes of her next dose of pain meds it becomes very apparent in her behavior that we still need the meds, but she hasn't needed any IV meds since yesterday afternoon. We are hopeful that discharge us in our near future--maybe as early as Monday. That would be SO nice! Nothing against the folks here--CHOP has been absolutely wonderful. She has awesome helpful and friendly nurses, she has great OT and PT folks working with her every day, and--get this--even the food is pretty good!
Still, hospital living can wear at you. Lilly said repeatedly this morning "I wanna' go home! It's easy ro walk at home!" As for me, I made the mistake yesterday of not taking a break from the hospital all day, and my emotional state this morning showed it. My wonderful man suggested I take some down time so I went out for a run in the chilly Philly air, had a nice shower, and got to remember that there is life outside of CHOP. A visit this afternoon from Aunt Judi and Uncle Doug also added a bright spot to our day.
So, here's hoping there won't be too many more blog posts typed on the iPhone in the dark of the hospital room!
Great news!! I do pray she gets out soon, but when she is healthy and physically ready. We sent a little care package from the Cubbies that might get delayed till Monday due to weather. Keep an eye for it. Maybe they will call you if it comes after you are released. We are heading off soon this morning to teach Lilly's Sunday school class (Parable of the Sower today)! We will pray for you all!!
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