Keeping this short tonight...we didn't get a long nap today, so I'm ready to join Lilly in slumberland.
She had a fabulous night last night. We remained roommate-less, and she slept SO soundly that she managed to barely awaken for her bladder (I did have to change some sheets in the middle of the night), and to entirely sleep through the blaring pulse ox alarm that persisted when the little light sensor came off of her finger (because she had rolled all over the bed and the wire was wrapped around her body), a blood draw early this morning, and the administration of oral meds early this morning.
We had a fun and relatively uneventful day. She barely complained of any pain all day (a little muscle spasm just before bed tonight) and is moving around pretty much normally. We spent much of the day in the play room, where we found all sorts of fun activities. Her appetite continues to be good, and we did have a consult with the nutrition department to gain some strategies for increasing her caloric intake (gonna' have to do that without upping mine!). The infectious disease team stopped in to discuss management of oral antibiotics upon discharge...we are going to go with a much less potent antibiotic for a few weeks post op, then hopefully will be fever free and antibiotic free thereafter. The ortho residents came by to change her dressings and her incisions continue to look lovely (as lovely as incisions and stitches can look--this is actually the best they have ever looked to me). She hates to have her dressings changed or her back even looked at, so she did protest quite loudly while they changed the dressing (which was, unfortunately concurrent with the infections disease team's visit because they wanted to see her incisions too).
We do not have a clear timeframe for discharge, which is a little frustrating, as we try to coordinate care for the older kiddos at home through the weekend. The longer we stay here, the more complicated it gets. We are hoping Dr. C might call in tomorrow with discharge instructions so we can get on home. We are all ready.
We are so grateful to God for the healing we are seeing in Lilly and for the opportunity to bring Him glory in sickness and in health. May He be magnified in our circumstances, whatever the outcome. Thanks to all of your for your comments and prayers!
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