After a long day of pretty much just sitting around and waiting for final lab results, prescriptions, and discharge orders yesterday, we were finally on our way our of the parking garage at CHOP around 6pm last night. Dr. Campbell came by late in the afternoon (he is SUCH a nice man!!) and felt that she should spend one night locally before we headed home just to make sure she was doing well. ALl of her blood work looked improved and the cultures from her tissue samples were still showing non growth of anything bad. He said "you have your work cut out for you..." meaning in the realm of her very low body weight. He wants us to work really hard on increasing her caloric intake so that she can "put some meat on her bones" before he attempts to re-insert the portion of the device that he removed. He is thinking that, as long as she has gained significant weight, he would like to try again in about 3 months to reinsert it.
Of course, my first thought was "Hmmmmmm, I wonder if that will be before or after we get Isabel, or will it be smack in the same time frame as when we'll be traveling??" Life is indeed complicated and full, but somehow I can rest knowing that in the Lord, all things are possible.
So we spent last night chilling at the Ronald McDonald House (I never cease to be amazed by what an awesome place this is!) and Lord willing today we will be on the road toward home, collecting Anna from my brother's house near Baltimore, and re-joining Jared who had a long day of band competitions yesterday and didn't even get home until 11:30pm last night. He may still be sleeping when new arrive.
As we return home, I am praying for wisdom to know when LIlly is physically ready to go back to school (regardless of how she feels about returning to school) and praying that we can now settle back into fall routines and avoid any imminent hospitalizations. (though we hope to get our referral soon for Anna to see an ENT who can implant her BAHA hearing aid).
Anyway, I cannot wait to be reunited with my big kids! Homeward bound!
Praise the Lord!
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